Cancer
My cancer journal
I have been thrust into the darkness of my own body, and I don't know what is happening to me
On many days since Dec. 17, 2009, I have been foggy on Percocet or Oxycodone. In the hospital I had a Dilaudid drip; there was a button hanging on a cord that I pushed with my thumb whenever I felt the pain of the surgical incisions or the other sources of post-surgical pain that still bedevil me from time to time.
It would be commendable to narrate the entire sequence of events that led to this moment lying on the couch supported on elbows typing awkwardly into the Macbook. But the power and concentration needed for such a straightforward narrative — truth be told, the emotional stance too, and the intellectual energy — these things are not liberally available in the way they were prior to surgery.
Yet a brief outline: I was diagnosed in November 2009 with a rare cancerous tumor located in the area of my lower back, on the front side of the sacrum; it measured about 9 cm by 8 cm by 6 cm and is called a sacral chordoma. The procedure with the highest probability of cure is a surgical removal of the tumor and enough surrounding tissue to ensure that no cancerous cells have remained. After numerous visits and consultations surgery was scheduled for Dec. 17. The operation is a long and complex one involving a neurosurgeon, a colorectal surgeon and a plastic surgeon as well as the anesthesiologist. It was estimated that the surgery would take from 12 to 16 hours but it did not take that long. I think it was about 8 or 10 hours.
Preparation for the Thursday morning surgery began Tuesday at midnight with a fast, followed by a colon-cleansing routine Wednesday involving this liquid that you drink that cleans you out completely. Then you wake at 4:30 Thursday morning to arrive at the hospital at 6; we took our places in a crowded and dark waiting room; we were among many other people also waiting for surgery. They were all types. It was nice to feel that we all had something in common. We were mostly a quiet bunch.
Anyway, as I said, a straightforward narrative is beyond the powers of your narrator; please allow it to suffice for now to say that I have been through an ordeal of some magnitude and have sensed throughout that some wisdom must be found somewhere in the experience but that for the time being the experience itself is far too large to be digested or contained or turned into fable or metaphor, and that I am too busy having the experience to contemplate it. At the same time I do feel the need to reach out and talk.
Some friends bought me a Kindle. That was a high point. One of them, the effervescent Mary B., brought me the Kindle while I was in the hospital all hooked up to tubes and wires and patched up with gauze and monitored constantly. The Kindle has been a revelation. Much will be said about that, I suspect.
There is also much to be said about pain, and about drugs and recovery and the particular strained indolence of staying home slowly getting better.
But for now that is mostly it. Everything takes longer now. That, too, is probably a revelation.
But all revelations lie in shadow now, while we are busy with the business of simply getting by, simply getting better.
***
After decades lighting up the screens of memory and emotion, revealing ghosts, making dormant patterns appear as if dusted with fingerprint powder, finding heat to make readable the invisible ink of preconscious inscriptions, decoding obscure languages spoken by personal archetypes, learning the many disguises of my personal demons, their modes of influence and preferred times of visitation, having illuminated enough of the inner world to have a fluent vocabulary of need, fear, pain, joy and etc., so that I could with some regularity hear the pain and fear of others and decode the secret systems revealed in the invisible ink of strangers, I had come to feel that few dark and inaccessible areas still existed in my self.
Then I got cancer and was thrust into the darkness of my own body. I know nothing of its languages, its schemes and symbols, its humor and irony, its brilliance; I have no idea where to search for the string that is going to lead me out of this. Suddenly I am an ignoramus of my own self.
Thrown back upon myself in this way I am reminded of the great attraction of the kind of modern existential book in which a baffled, tortured character is encased in cement or hooded, thrown into a maze, made to suffer repeated and meaningless tortures, how such books appealed to me as a young man because they mirrored my experience of my self and the world, and how, to my chagrin, over the years, with the exception of a bracing ranter like Thomas Bernhard or someone as strangely keen and indicipherable as Robert Musil — or, for that matter, Haruki Murakami of “The Wind-Up Bird Chronicle” — I have preferred to read those who shed light rather than reflect back my own darkness.
So here I am again in a kind of mysterious, dark cell. I know very little of what is happening to me. I have it on good authority that I have been saved from a terrible death. This much seems reliable. Modern science has rescued me from a slow and painful death.
Having been found and brought to safety, I now am left with a set of residual difficulties arising chiefly from the methods used to save me.
I bear no grudge. I prefer living with these difficulties.
But I have no language with which to spell out the themes with which these difficulties are bound into story, or how one small cause led to this conflagration and hell, what primal sin it was, what is to be learned from the concatenation of seeming trivialities … thus one is reduced to writing as cleverly as possible about what one does not know — chiefly, as is obvious, by contrasting it with what one does profess to know.
And in the night if not too messed up on opioids or drowsy on gabapentin, a distant memory of beauty and order makes its feeble visit.
What happened? What is this strange life I am now leading, when at the end of the day a walk near the beach at sunset is an ecstatic release, when the Marin mountains to the north seem eternally beautiful and the tight-packed corrugations of gray, wintry storm clouds seem deeply lustrous and full of untold secrets?
I do not know. I do know that having been saved by surgery, being weakened and humbled, I am alert to every fiber of life, and raw to the wind.
Cary Tennis writes Salon's advice column, leads writing workshops and creative getaways, publishes books, writes an occasional newsletter and tweets as @carytennis.
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Kate Hudson’s cancer horror show
The bubbly actress's horrific movie, "A Little Bit of Heaven," turns terminal illness into a twee joke
Kate Hudson in "A Little Bit of Heaven" Ladies and gentlemen, we are gathered here today to mourn a sad loss. A luminous, unique presence who ably graced our lives and then was snuffed out far too early. A moment of silence, please, for Kate Hudson’s career.
It seems like only yesterday we were beguiled by the lively, bohemian Penny Lane in “Almost Famous.” But it’s been a painful decade since, as I know many of you gathered here can bear witness. Those of you who steadfastly supported Hudson over the years, who paid good money for “Bride Wars,” for “How to Lose a Guy in 10 Days,” for “Raising Helen,” “You Me & Dupree,” “Fool’s Gold,” “My Best Friend’s Girl,” “Alex and Emma,” “Le Divorce,” and “Something Borrowed” — you know what I’m talking about. You’re heroes for sticking around this long. That’s why it’s both tragic and necessary to come to the end of our journey now, to let her go off to a better place. The D-list. It’s called “A Little Bit of Heaven.”
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Mary Elizabeth Williams is a staff writer for Salon and the author of "Gimme Shelter: My Three Years Searching for the American Dream." Follow her on Twitter: @embeedub. More Mary Elizabeth Williams.
Lessons of a baby bucket list
Avery Lynn Canahuati accomplished a lot in her six months of life. Imagine what the rest of us can do in a lifetime
Avery Lynn Canahuati (Credit: http://averycan.blogspot.com/) What have you accomplished since November? What dreams have you fulfilled? In that time, Avery Lynn Canahuati threw out the first pitch at a baseball game, got a letter from the president and dressed up like a troll doll. She experienced deep love, and changed the lives of her family and friends. And that’s just what Canahuati got done in the first six months of her life. They were also the last.
Canahuati was born in Texas on Nov. 11. This past Good Friday, she was diagnosed with spinal muscular atrophy (SMA), a group of rare neuromuscular diseases that, in her case, were terminal. “We asked our doctors specifically if there is anything. Is there trial drugs, anything out of the country?” her mother, Linda, told CNN this week. So after “sitting around for two days crying and being devastated, since there is no cure and there is nothing we can do,” her father, Mike, decided to make the most of what was left of his daughter’s cruelly brief expected lifespan. Writing in Avery’s voice, he created a blog — and set a few goals.
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Mary Elizabeth Williams is a staff writer for Salon and the author of "Gimme Shelter: My Three Years Searching for the American Dream." Follow her on Twitter: @embeedub. More Mary Elizabeth Williams.
Words we had after he died
When we lost my husband to cancer, my family's world went upside down. We made sense of it the best we could
(Credit: Tinga via Shutterstock) On the day my husband died, our daughter Allison started screaming my name from her bedroom, where she’d taken refuge. I burst open the door, imagining she had hurt herself, but she was just standing there in the center of the room. “Mom. Mom,” she said. “You are a widow now. A widow. I don’t want you to be a widow. You can’t be a widow.” I had to agree: It just didn’t seem possible.
I tried to hold her, but she was hyperventilating a bit. “I’m ‘the girl whose dad died when she was 13′?” she choked out. “Oh my God. That’s who I am now. When people ask me what my dad does, or how we get along, or anything, that’s how I will have to answer: ‘My dad died when I was 13.’”
Continue Reading CloseKathleen Volk Miller is co-editor of Painted Bride Quarterly, co-director of the Drexel Publishing Group and an Associate Teaching Professor at Drexel University. She is a weekly blogger (Thursdays) for Philadelphia Magazine's Philly Post and is currently working on a collection of essays. Follow her @kvm1303. More Kathleen Volk Miller.
Look at my scars
The remnants of my own illness have taught me that when it comes to difference, don't stare -- but don't turn away
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Mary Elizabeth Williams is a staff writer for Salon and the author of "Gimme Shelter: My Three Years Searching for the American Dream." Follow her on Twitter: @embeedub. More Mary Elizabeth Williams.
Confronting cancer webcast
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My oncologist says that whoever came up with the phrase “the gift of cancer” has the worst taste in gifts she’s ever heard of. But though it’s not exactly a set of car keys under the seat, cancer has, for the past year and a half, been the gift I’ve been given. And from an initial malignant diagnosis of melanoma through surgery through a Stage 4 rediagnosis through a last-ditch, Phase 1 clinical trial to a recovery that has stunned the research community, I’ve shared this adventure with the readers of Salon. And along the way, you’ve given so much in return. You’ve told me your own experiences with illness, with the healthcare system, with grief and frustration, and with the ways a shattering experience — either your own or that of someone you love — can turn life around. Sometimes even for the better. So it was a unique privilege to get to talk to a few of you recently for a Salon webcast, and answer your questions on life here in Cancer Town. For those of you who couldn’t make it live, videos of the full webcast are posted below.

Mary Elizabeth Williams is a staff writer for Salon and the author of "Gimme Shelter: My Three Years Searching for the American Dream." Follow her on Twitter: @embeedub. More Mary Elizabeth Williams.
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