Cancer
A blogger chronicles his own death
In a gut-wrenching posthumous post, Derek Miller shows the value of detailing life's last act
Derek Miller On May 3, Canadian writer and musician Derek Miller died at age 41. On May 4, he blogged for the last time. “Here it is,” he wrote. “I’m dead, and this is my last post to my blog.”
Miller began his blog, penmachine, over a decade ago, but the narrative took a dramatic turn after his diagnosis of colorectal cancer in 2007. The frank and remarkably zesty chronicle of his experience is another example of the power of online community, and the ways in which the Internet is helping demystify illness and dying. Writing and blogging about them has become a genre unto itself, one in which the person with the grim diagnosis has the opportunity to express last-ditch hopes and dark fears, and anyone who chooses to click can get a ringside seat for one of the most intimate experiences life offers — its final one.
It’s always a brutal loss for the online community when someone like Miller, who’s been sharing something as personal as disease, dies. A year ago, San Francisco Chronicle writer and blogger Alicia Parlette died of a rare form of soft tissue sarcoma after chronicling her “Cancer. Despair. Hope. Faith.” journey on and off for half a decade. And in September, “Today” correspondent Mike Celizic died of T-cell lymphoma after sharing his “Adventures in Cancerland” for MSNBC.com. Celizic’s fearlessly funny prose — writing that his terminal diagnosis left him “crying like Glenn Beck, only for real” — gave a profoundly humane and refreshingly honest account of the terror and absurdity of facing one’s final days.
Everyone who must deal with death — and that’s everyone, by the way — grapples with it differently. Alicia Parlette wrote resolutely of her “quick chats with God,” while Derek Miller and cancer-diagnosed Christopher Hitchens have written passionately about their atheism. But we all know the strange and terrible truth is that no matter how you slice it, one day we’ll be gone. Gone, if we’re lucky, from a world that has been very good to us. Miller’s birthday wish to his daughter, one in which he asked, “Will this be as momentous a year? No one knows yet. Sadly, though, it is unlikely I’ll live to see Lolo’s next birthday in 2012,” is wrenching not just because it was proved true so soon, but because Miller boldly, bravely wrote about that truth. He acknowledged the great taboo: mortality, in all its complexity of feeling.
That’s what makes Miller and Parlette and Celizic and others truly remarkable. Aside from the fact they were all terrific writers, their prose illuminates one of the greatest secrets of all about sickness and dying: that it’s not all bad. Disease isn’t some great, ennobling experience, as anyone who’s ever rocked a paper gown knows. But it really can give a person a buttload of clarity. Those of us who have signed Do Not Resuscitate forms can tell you: Being scared crapless about dying is only part of the story. Being made acutely aware of the awesomeness of living is the other. “I can lament what I will never know, yet still not regret what got me where I am,” Miller wrote in his final message, adding that “The world, indeed the whole universe, is a beautiful, astonishing, wondrous place.” That’s what makes it such a bitch to leave.
Last week, I was on vacation with my family for a much-needed and eminently healing getaway. I’m still rebounding — and will be never be the same — after my diagnosis of malignant cancer and lifesaving surgery last year. One of my best friends is in intense treatment for ovarian cancer. And my beloved father-in-law died from stomach cancer in March. After the roller coaster of the last few months, we needed real roller coasters and swimming pools.
So we marveled at spring flowers that Grandpa didn’t get to see this year. We reminisced about trips past that he’d been part of. Sometimes, we were even happy enough to forget we were sad. And as is inevitably the case, when we got down to the last day, our dwindling time became increasingly bittersweet. We ate ice cream cones, savoring them until they dripped down our arms. We took a million pictures of our last sunset. We said goodbye. That’s how it is at the end — whether it’s a trip greatly enjoyed or a life well lived. The pleasure of being there is infused with the sadness of leaving. We look back over a shoulder one last time, hoping to hang on to the moment forever. And we want to keep saying, again and again and again, enough to last to the end of the lifetimes we won’t be there to share, what Miller wrote in his last message to his family and the world. “I loved you deeply, I loved you, I loved you, I loved you.”
Mary Elizabeth Williams is a staff writer for Salon and the author of "Gimme Shelter: My Three Years Searching for the American Dream." Follow her on Twitter: @embeedub. More Mary Elizabeth Williams.
Kate Hudson’s cancer horror show
The bubbly actress's horrific movie, "A Little Bit of Heaven," turns terminal illness into a twee joke
Kate Hudson in "A Little Bit of Heaven" Ladies and gentlemen, we are gathered here today to mourn a sad loss. A luminous, unique presence who ably graced our lives and then was snuffed out far too early. A moment of silence, please, for Kate Hudson’s career.
It seems like only yesterday we were beguiled by the lively, bohemian Penny Lane in “Almost Famous.” But it’s been a painful decade since, as I know many of you gathered here can bear witness. Those of you who steadfastly supported Hudson over the years, who paid good money for “Bride Wars,” for “How to Lose a Guy in 10 Days,” for “Raising Helen,” “You Me & Dupree,” “Fool’s Gold,” “My Best Friend’s Girl,” “Alex and Emma,” “Le Divorce,” and “Something Borrowed” — you know what I’m talking about. You’re heroes for sticking around this long. That’s why it’s both tragic and necessary to come to the end of our journey now, to let her go off to a better place. The D-list. It’s called “A Little Bit of Heaven.”
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Mary Elizabeth Williams is a staff writer for Salon and the author of "Gimme Shelter: My Three Years Searching for the American Dream." Follow her on Twitter: @embeedub. More Mary Elizabeth Williams.
Lessons of a baby bucket list
Avery Lynn Canahuati accomplished a lot in her six months of life. Imagine what the rest of us can do in a lifetime
Avery Lynn Canahuati (Credit: http://averycan.blogspot.com/) What have you accomplished since November? What dreams have you fulfilled? In that time, Avery Lynn Canahuati threw out the first pitch at a baseball game, got a letter from the president and dressed up like a troll doll. She experienced deep love, and changed the lives of her family and friends. And that’s just what Canahuati got done in the first six months of her life. They were also the last.
Canahuati was born in Texas on Nov. 11. This past Good Friday, she was diagnosed with spinal muscular atrophy (SMA), a group of rare neuromuscular diseases that, in her case, were terminal. “We asked our doctors specifically if there is anything. Is there trial drugs, anything out of the country?” her mother, Linda, told CNN this week. So after “sitting around for two days crying and being devastated, since there is no cure and there is nothing we can do,” her father, Mike, decided to make the most of what was left of his daughter’s cruelly brief expected lifespan. Writing in Avery’s voice, he created a blog — and set a few goals.
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Mary Elizabeth Williams is a staff writer for Salon and the author of "Gimme Shelter: My Three Years Searching for the American Dream." Follow her on Twitter: @embeedub. More Mary Elizabeth Williams.
Words we had after he died
When we lost my husband to cancer, my family's world went upside down. We made sense of it the best we could
(Credit: Tinga via Shutterstock) On the day my husband died, our daughter Allison started screaming my name from her bedroom, where she’d taken refuge. I burst open the door, imagining she had hurt herself, but she was just standing there in the center of the room. “Mom. Mom,” she said. “You are a widow now. A widow. I don’t want you to be a widow. You can’t be a widow.” I had to agree: It just didn’t seem possible.
I tried to hold her, but she was hyperventilating a bit. “I’m ‘the girl whose dad died when she was 13′?” she choked out. “Oh my God. That’s who I am now. When people ask me what my dad does, or how we get along, or anything, that’s how I will have to answer: ‘My dad died when I was 13.’”
Continue Reading CloseKathleen Volk Miller is co-editor of Painted Bride Quarterly, co-director of the Drexel Publishing Group and an Associate Teaching Professor at Drexel University. She is a weekly blogger (Thursdays) for Philadelphia Magazine's Philly Post and is currently working on a collection of essays. Follow her @kvm1303. More Kathleen Volk Miller.
Look at my scars
The remnants of my own illness have taught me that when it comes to difference, don't stare -- but don't turn away
(Credit: Natalia Klenova via Shutterstock) “Do I freak you out?” she had asked.
It was the kind of question adults rarely pose. But Abigail (a pseudonym, like some other names in this piece) is 8, and she doesn’t have any qualms about being direct. The person she was asking, my daughter Beatrice, likewise didn’t hesitate in her reply.
Abigail is new to our school this year. She is in every way a typical second-grader, except that she was born without a left hand. It’s a trait that makes her undeniably noticeable, and so, sometimes, people ask questions. Sometimes Abigail has questions of her own. Sometimes, when you’re different, you want to know.
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Mary Elizabeth Williams is a staff writer for Salon and the author of "Gimme Shelter: My Three Years Searching for the American Dream." Follow her on Twitter: @embeedub. More Mary Elizabeth Williams.
Confronting cancer webcast
Full videos posted for Salon Core conversation on "coming out of the sickness closet" VIDEO
My oncologist says that whoever came up with the phrase “the gift of cancer” has the worst taste in gifts she’s ever heard of. But though it’s not exactly a set of car keys under the seat, cancer has, for the past year and a half, been the gift I’ve been given. And from an initial malignant diagnosis of melanoma through surgery through a Stage 4 rediagnosis through a last-ditch, Phase 1 clinical trial to a recovery that has stunned the research community, I’ve shared this adventure with the readers of Salon. And along the way, you’ve given so much in return. You’ve told me your own experiences with illness, with the healthcare system, with grief and frustration, and with the ways a shattering experience — either your own or that of someone you love — can turn life around. Sometimes even for the better. So it was a unique privilege to get to talk to a few of you recently for a Salon webcast, and answer your questions on life here in Cancer Town. For those of you who couldn’t make it live, videos of the full webcast are posted below.

Mary Elizabeth Williams is a staff writer for Salon and the author of "Gimme Shelter: My Three Years Searching for the American Dream." Follow her on Twitter: @embeedub. More Mary Elizabeth Williams.
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