Breast cancer
Covering up the breast
The National Cancer Institute decides not to publicize the results of a publicly funded implant study. What's the deal?
This is a story about breasts. And about a federal agency going out of its way to not alert journalists to a major publicly funded cancer study.
There was, to be sure, a press release. “In one of the largest studies on the long-term health effects of silicone breast implants, researchers from the National Cancer Institute (NCI) in Bethesda, Md., found no association between breast implants and the subsequent risk of breast cancer,” it began.
But even if you have breast implants, you undoubtedly haven’t heard about this study — unless you somehow stumbled across the release buried in the NCI Web site. NCI press officer Brian Vastag says that — in a peculiar deviation from normal procedures — he was “forbidden” from alerting journalists to the online release. In an up-yours gesture to his superiors (motivated, perhaps, by the fact that he’d already given notice to quit), Vastag last week forwarded the link for the press release to a listserv for members of the National Association of Science Writers.
“It makes me crazy when tax-funded public health research doesn’t make it to the public,” Vastag wrote in his e-mail. “So here’s the lead from the press release for anyone who’s interested.”
According to Vastag, NCI would routinely notify about 500 science writers about such studies by faxing or — with a few keystrokes — e-mailing them a press release. “These are the results of eight years of research,” Vastag explained about the $4 million study conducted by Dr. Louise Brinton, the principal investigator from NCI’s Division of Epidemiology and Genetics. “Brinton’s is the definitive study.”
Other researchers may or may not agree with that assessment, but science writers who received Vastag’s e-mail also found NCI’s behavior highly perplexing. “It’s very odd for a public agency to know about a major, publicly-funded study and choose not to release it in the normal manner,” noted science writer and NASW listserv coordinator Robert Finn. “What’s strangest is not the results of the study but that the NCI went to the trouble of preparing a press release — and then they were not allowed to release it to journalists.”
However, Pat Newman, chief of NCI’s mass media division, said the agency decided not to alert journalists because Cancer Causes and Control, the European-based journal that is publishing Brinton’s study in its November issue, embargoed it from distribution in hard copy — even though the journal has already posted an electronic version on its Web site and no one was asking NCI to disseminate hard copies in advance of publication.
“We felt a commitment to post that the study was out, but we couldn’t in good faith promote the information available in the journal until it was available in hard copy,” said Newman. However, she seemed surprised when asked if NCI plans to tout the study come November. “We’ve already posted the press release, so why would we distribute old news?” she said.
Brinton’s study is not the first to declare that silicone breast implants are not linked to breast cancer, but it is believed to be the most comprehensive. Unlike previous studies that tracked the effects of implants for less than a decade, Brinton’s followed nearly 14,000 women who had implant surgery for cosmetic reasons in both breasts for 13 years. In addition to refuting some earlier findings that appeared to link cancer to implants, Brinton’s study also counters other research suggesting an actual reduction in risk for implant recipients, a finding that perplexed researchers.
So given the estimated 1.5 million women with breast implants — and the huge number considering having them — why not tout the results to journalists who could disseminate the information to a mass audience? The reason, according to Vastag, is that Brinton herself wanted NCI to play mum — even though she herself has touted the project as “the most comprehensive epidemiological study of breast implants to date.”
Vastag said that Brinton was concerned because in the past she has been criticized by competing interests on all sides of the issue, especially lawyers defending the implant industry. Brinton herself denied that she asked the NCI not to publicize the findings. But she did acknowledge that the breast implant issue is so emotional that it sometimes appears impossible to satisfy anyone.
Throughout nine years of research, she says she was scrutinized by people who worried that her report might provide ammunition to anti-implant advocates. She said she has met with those on all sides of the issue — breast implant survivor groups as well as plastic surgeons and implant manufacturers. “If I talk to one contingent, another contingent uses that as evidence that I’m siding with that group,” she explained.
According to breast cancer expert and author Dr. Susan Love, since Brinton’s research confirms earlier findings it is ultimately a ripple, not a rupture, on the field of breast cancer research — but reading or hearing about it would help those most affected. “Maybe women with implants can feel more comfortable now,” she said.
Denise Dowling is a freelance writer. More Denise Dowling.
The tyranny of pink
The author behind a new documentary tells Salon how breast cancer got cute and where Susan G. Komen lost its way
A still from "Pink Ribbons, Inc." Why wait for October for breast cancer awareness? There couldn’t be a more perfect moment for director Lea Pool’s new documentary “Pink Ribbons Inc.” — a searing, passionate and deeply human examination of the warping of a cause.
It’s been a shaky year for the pink. In January, the Susan G. Komen Foundation, the undisputed center of the breast cancer universe in its be-ribboned, Schiaparelli-hued incarnation, made the spectacular misstep of attempting to withdraw funding for breast cancer screenings at Planned Parenthood. Though the howls of public outrage forced the foundation to back off – and prompted the resignation of its vice president for public policy, Karen Handel — the debacle was just the latest and most grotesque move from an organization ostensibly devoted to women’s health. There was the ill-advised, high-profile partnership with Kentucky Fried Chicken, a name not exactly synonymous with good health. There was a saturation of merchandising, including a perfume of questionable toxicity. No wonder registrations for this year’s Race for the Cure are down, as Komen continues to be dogged by questions about its integrity.
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Mary Elizabeth Williams is a staff writer for Salon and the author of "Gimme Shelter: My Three Years Searching for the American Dream." Follow her on Twitter: @embeedub. More Mary Elizabeth Williams.
Komen scandal: Goodbye, Karen Handel
One week after the foundation's blunder, its scandal-plagued V.P. steps down
Karen Handel (Credit: AP/John Bazemore) It was perhaps inevitable. But it speaks volumes nonetheless. On Tuesday morning, the Susan G. Komen Foundation announced that its vice president for public policy, Karen Handel, was resigning.
It was the latest very public – and very bitter – turn in a story that has thrown the traditionally esteemed Komen foundation for one hell of a loop. Just one week ago, Planned Parenthood announced that Komen was halting its funding for the organization’s breast cancer screenings. The move, the Komen foundation insisted, was about “the charity’s newly adopted criteria barring grants to organizations that are under investigation by local, state or federal authorities” – itself a dubious smear on a respected women’s health organization. But it didn’t take long for critics to note that Handel, who was hired just last year, had run for governor of Georgia on a platform of conspicuously anti-Planned Parenthood rhetoric. In 2010, she declared “I do not support the mission of Planned Parenthood,” and that she “strongly supports” laws prohibiting “the use of taxpayer funds for abortions or abortion-related services.” A lady like that in the driver’s seat of your organization just as you’re distancing yourself from Planned Parenthood looks like a whole more than a coincidence.
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Mary Elizabeth Williams is a staff writer for Salon and the author of "Gimme Shelter: My Three Years Searching for the American Dream." Follow her on Twitter: @embeedub. More Mary Elizabeth Williams.
Susan G. Komen’s priceless gift
A radical decision woke the country up to an alarming rightward drift, and gave new life to women’s health advocacy
Members of Planned Parenthood, NARAL Pro-Choice America and more than 20 other organizations hold a "Stand Up for Women's Health" rally in Washington (Credit: Joshua Roberts / Reuters) The startling intensity that we saw this week in response to Susan G. Komen for the Cure’s decision to pull its grants from Planned Parenthood — an intensity that prompted the Komen foundation to reverse its decision today — may be the best thing that’s happened to the conversation about reproductive rights in this country for decades. It certainly should be.
Practically since Roe v. Wade was decided in 1973, reproductive rights activists have been left to play stilted defense against ideological opponents who grabbed the language of morality, life, love and family as their own, always deploying it with reference to the fetus. The rhetoric around reproductive rights, which has more recently begun to creep into arguments over contraception, has become suffocating in its emotional self-righteousness, but too muscular, too ubiquitous to effectively combat.
Continue Reading CloseRebecca Traister writes for Salon. She is the author of "Big Girls Don't Cry: The Election that Changed Everything for American Women" (Free Press). Follow @rtraister on Twitter. More Rebecca Traister.
Joan Walsh is Salon's editor at large. More Joan Walsh.
Komen victim of “bullying,” sad abortion foe says
Someone make an "It Gets Better" video for poor Kathryn Jean Lopez of the National Review
A very serious anti-bullying message from Kathryn Jean Lopez Poor Kathryn Jean Lopez, the National Review Online’s resident delicate flower, anti-feminist traditional Catholic, and enemy of all homosexualists and abortionists. She was so delighted when Susan G. Komen for the Cure announced that it would no longer be sending grant money to Planned Parenthood to fund breast cancer screenings and mammogram referrals, because it meant that her side had “won” a battle in the war against women’s health providers that perform abortions and provide contraception.
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Alex Pareene writes about politics for Salon and is the author of "The Rude Guide to Mitt." Email him at apareene@salon.com and follow him on Twitter @pareene More Alex Pareene.
How the Internet changed Komen’s mind
The torrent of reactions to the cancer group's Planned Parenthood defunding proves the power of social media VIDEO
Nancy Brinker, founding chair of Susan G. Komen for the Cure (Credit: AP/Salon) It started with a tweet. And in the end, that’s what won the war. On Tuesday, Planned Parenthood sent out a no-punches-pulling alert that “Susan G. Komen caves under anti-choice pressure, ends funding for breast cancer screenings at PP health centers.” By Friday, Komen for the Cure had said it was sorry, and reversed its decision.
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Mary Elizabeth Williams is a staff writer for Salon and the author of "Gimme Shelter: My Three Years Searching for the American Dream." Follow her on Twitter: @embeedub. More Mary Elizabeth Williams.
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