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Mark Dant

Mark Dant is volunteer executive director of the Ryan Foundation, Inc. and father of a child with an MPS disorder.

Dr. Paul Harmatz doing a general check-up on Joao Bueno (left), 6 years old, from Brazil, during his weekly enzyme replacement therapy with other children having different forms of MPS--Mucopolysaccharidosis--at Oakland Children's hospital in Oakland, Ca ((Photo By Liz Hafalia/The San Francisco Chronicle via Getty Images))

To save lives, the FDA must change how it evaluates rare disease treatments

Matthew Ellinwood, Mark Dant