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Matthew Ellinwood

N. Matthew Ellinwood, D.V.M., Ph.D. is the chief scientific officer of the National MPS Society.

Dr. Paul Harmatz doing a general check-up on Joao Bueno (left), 6 years old, from Brazil, during his weekly enzyme replacement therapy with other children having different forms of MPS--Mucopolysaccharidosis--at Oakland Children's hospital in Oakland, Ca ((Photo By Liz Hafalia/The San Francisco Chronicle via Getty Images))

To save lives, the FDA must change how it evaluates rare disease treatments

Matthew Ellinwood, Mark Dant

Sad little boy at home (Getty Images/kieferpix)

The FDA is failing children with a rare, neglected disease sometimes called “childhood dementia”

Matthew Ellinwood