Life stories
My cancer diagnosis
Until last week, it was the best summer of my life. Then my doctor gave me the news I dreaded
Mary Elizabeth Williams On Monday, Showtime’s series “The Big C,” about a middle-aged woman with life-threatening melanoma will premiere. On Wednesday of this week, I learned I was living it.
It started with a bump, a little scab on my head that wouldn’t go away. I can’t remember the exact day I first noticed it, but it was early summer. It was on the part of my hair, right near a scar from a childhood injury. I just figured I’d dinged myself up somehow and all my sun and swimming and hair care products were preventing it from healing properly. I hypochondriacally Googled “infected cuts,” never guessing for a moment I was chasing the wrong search term.
Then last week I went to the dermatologist. I figured I’d get some antibiotics and ointment. Instead, when she looked at my scalp, she gave a little involuntary sucking-in of air and said quietly, “That looks like cancer.”
That’s how your life changes, in four words.
Even then, however, I didn’t fret. The doctor scraped my head to run a biopsy, and I assumed I’d come back in a few days for a minor melanoma procedure. My Facebook status update was “Best summer ever.” And then, at 10:15 Wednesday morning, my phone rang. “I’m sorry,” the doctor said. “It’s malignant.”
She told me that because of the size and the thickness of the melanoma, we were going to have to be “aggressive” in treating it. I was to go to Sloan-Kettering the next day to meet with an oncologist for further tests, to determine if the cancer has spread. She further said I was almost certainly in for some chemo, and probably other forms of treatment as well. “It’s a lot of information,” she told me, “and I’m sure you have a lot of questions.” But I don’t. I just have one. Why?
My brand-new oncologist’s office called me a few moments later to discuss my imminent appointment. Things move very quickly when you’re in the Malignant Zone.
I’ve been applying industrial grade sunscreen to my skin, a vampire’s ideal pigment, most of my life. But nobody ever said that just walking around under the sky would make the top of my head vulnerable, that I ought to have been wearing hats this whole time. Skin cancer of the scalp is one of the deadliest forms of melanoma. It has nearly double the rate of fatality as cancers elsewhere on the skin. If it is advanced, the five-year survival rate is slim. Oh well, I always liked a challenge.
“My life has become a shitty Showtime series,” I IM’ed a colleague. “Weeds?” he wrote back. “Dexter?” I typed back, “Inside NASCAR.”
A few moments after deciding that the rest of my day was going to involve beer and a Will Ferrell movie, my friend Larry, who has teetered on the fence of parental ambivalence for years, texted me two words: “Knocked up.” “Malignant,” I wrote back. Larry and his wife are expecting in January. I can’t wait to meet their baby. “And in 10 years,” he told me, “you and I are going to dance all night in Barcelona.” It’s good to have an incentive plan.
I called my best friend in California, and got her voice mail. “I just got off the phone with my doctor,” I said. “And to give you an idea of how it went, I’m wondering a lot about my hair and my access to pot.” Moments later she called back, and channeling her inner John McEnroe, bellowed into my phone, “THIS IS BULLSHIT.” It was, coincidentally, her mother’s birthday. She would have been 72, had she not died of cancer when Sharon was a teenager.
I ate pretzel bites and jalapeño cheese for lunch, because, what the hell. I went to the movies. I threw a coin into the fountain at Lincoln Center and made a wish. I laughed at the perfect timing of it all when the Five Stairsteps’ “Ooh Child” came up on my iPod’s shuffle. I hid behind my sunglasses on the A train, tears streaming down my face. I told my daughters that Mama is sick, and she’s probably going to have to go through chemo like Grandpa did. “But then you’re going to get better, right?” my elder daughter asked. “I’m going to try really hard,” I replied.
On Thursday I spent several hours at Sloan-Kettering, answering questions and filling out forms. I sat in a waiting room full of quietly frantic-looking people watching “Deal or No Deal” and availing themselves of the free coffee. A young woman in lace knee socks, plaid miniskirt, and Led Zeppelin T-shirt typed lazily on her phone. I don’t think her peach fuzz hairstyle was a fashion statement.
Next week, I am going back to have a portion of my scalp removed, and flesh from either my neck or my thigh grafted onto it — we don’t yet know which. Apparently the surgeon likes to wing it, skin graft-wise. I will wake up with a ping pong ball-size permanent bald spot, and a badass scar that I intend to go around telling people I got in Desert Storm. I am going to have lymph nodes removed and biopsied. And then, my new cancer doctor tells me, once we get the results from all that, we can begin my “treatment.”
A million years ago — Tuesday night — I went out for drinks with my agent, which was enough to make me lament my literary prospects and the folly of ever choosing to become a writer. “Why couldn’t I have been good at math?” I had cracked. I also can’t dance. I’m bad at sports. My navigational sense is so remedial I get lost in a grid system. I am unable to follow even simple directions, whether it’s a recipe or the assembly instructions for an IKEA shelving system. And I am pretty inept at self-diagnosing cancer.
But so far this year I’ve posed nude in a magazine, chased a pair of muggers into a Bronx housing project, swung on a trapeze, splashed in the ocean with my daughters, and opened my skeptical heart to love again. In November, I am going to Costa Rica to surf and party with monkeys. I’m crappy at a lot of stuff, but I am phenomenal at telling fear to suck it so I can go about the business of living. And so while I don’t know what the future holds, with every breath in me, I’m going to keep doing what I do best. And live.
Mary Elizabeth Williams is a staff writer for Salon and the author of "Gimme Shelter: My Three Years Searching for the American Dream." Follow her on Twitter: @embeedub. More Mary Elizabeth Williams.
How to stop the bleeding
A year after Chris died, I was still shocked by how little I knew about being in combat zones. It was time to learn
The author with his friend Chris Hondros, right, who died in Libya in 2011. (Credit: Nicole Tung) A tourniquet is a simple tool, but I found it practically impossible to deal with when I needed it the most. Slickened with blood, the inch-wide Velcro-backed webbing slid through my gloved hands like a wet snake when I tried to pull it tight. In an adrenaline panic fueled by the sound of gunfire and explosions, I hadn’t noticed that it had twisted under Darryl’s heavily bleeding leg, giving the Velcro nothing to grab when I was finally able to cinch it down. I needed to sort it out fast, or my colleague was going to die.
Continue Reading CloseGreg Campbell's new book is called "Pot, Inc.: Inside Medical Marijuana, America's Most Outlaw Industry." He is the author of "Flawless: Inside the Largest Diamond Heist in History," "Blood Diamonds: Tracing the Deadly Path of the World's Most Precious Stones" (the source material for the Leonardo DiCaprio movie of the same name) and "The Road to Kosovo: A Balkan Diary." Campbell is also an award-winning journalist whose his writing has appeared in The Wall Street Journal Magazine, The Economist, The San Francisco Times, Paris Match, and The Christian Science Monitor, among others. He lives in Fort Collins, CO. More Greg Campbell.
My home, ripped apart
As I watch the Bosnian war crimes trial, I wish I could explain the horrors I saw as a boy, and how much we lost
A photo of the author examining bullet holes near the cemetery where his family is buried in Bosnia. (Credit: Eldin Trebincevic) My American friend James and I were watching soccer at a restaurant in Queens, but I couldn’t stop reading a story about Ratko Mladic’s trial at the Hague. There were two pictures with the story: One showed him smiling as he listened to his indictment at a pretrial hearing, and another of a mass grave he created.
“What’s that?” James asked.
I wanted to tell James how personal this was. It made me crazy to watch for 16 years as this monster responsible for killing what might be as many as 250,000 of my countrymen eluded authorities. “It’s the modern-day Nuremberg trial,” I said, wishing I could explain better.
Continue Reading CloseKenan Trebincevic’s work has appeared in the New York Times and on American Public Media radio. He is finishing a memoir about surviving the war called “The Bosnia List.” More Kenan Trebincevic.
My bully, my best friend
At first, I thought it was a joke when John called me "gay." By the time the school intervened, no one was laughing
(Credit: Tad Denson via Shutterstock/Salon/Benjamin Wheelock) The first time someone called me a “faggot” I didn’t hear it at all. That’s because my head was being slammed against a locker, the syllables crashing together like cymbals in my ear.
When I arrived at this new private school in seventh grade, after my mom got a job teaching, I hoped Fred and I might be friends. We were both faculty brats, and the school catered to elite students from wealthy families.
But our similarities ended there. Fred was tall for an eighth grader, and he was clear-skinned and golden, with hair so light it seemed more than blond. I was short, stocky and pale. He wore clothing emblazoned with Hilfiger and Klein. I was perpetually clothed in hand-me-downs. People whispered that he smoked pot and felt up girls after school. I had changed schools so often I’d forgotten how to make friends.
Continue Reading CloseYannick LeJacq is a freelance writer and photographer living in New York City. His work has appeared in Kill Screen, The Wall Street Journal, The Atlantic, and other publications. You can follow him on twitter @YannickLeJacq. More Yannick LeJacq.
A death that was also a birth
As a midwife, I've spent the last 30 years taking care of women in pregnancy. But nothing prepared me for this
(Credit: Clara via Shutterstock) The call came early in the morning. The 3-month-old granddaughter of my neighbor had finally succumbed to the illness she was born with. I am a midwife, but this call wasn’t about a birth. This time the call was from the mortuary.
I have spent the last 30 years taking care of women in pregnancy, birth and beyond. I use my hands to help bring life into this world. Over the past few years, however, I found myself using those very same hands in the performance of a Taharah, a Jewish ritual that prepares a dead woman for burial. Birth, life, joy, beginnings vs. death, decay, finality. Such a contrast! What could be more different? And yet, somewhere in my consciousness, there was a commonality. Caring for a woman in her life, preparing a woman for birth had a parallel in preparing a woman for burial. The act of helping a woman and her baby through their many transitions seemed analogous to helping the soul transition from this plane of existence to the next.
Continue Reading CloseTova Hinda Siegel is a writer who lives in Los Angeles. More Tova Hinda Siegel.
Interview With My Bully: The bully who asked me out
Caleb insulted my dead boyfriend in front of our entire class. Years later, I learned what he'd really been after
(Credit: Tad Denson via Shutterstock/Salon/Benjamin Wheelock) My prep school may have been home to the offspring of politicians, federal judges and national media personalities, but first and foremost we were teenagers. And so in the spring of 1998, my class gathered in the school library to plan our senior prank.
“We should direct all highway traffic into the school parking lot!” somebody suggested.
“Let’s cover everything in Vaseline!” someone else said.
I played along, but I was having a tough time. Eight months before, my boyfriend Ben had been killed in a car accident. He’d been different from the other guys: almost preternaturally kind and, like me, overly intellectual. On the way to our junior prom, we’d sat in the limo discussing “The Great Gatsby.”
Continue Reading CloseJennifer Miller's debut novel, "The Year of the Gadfly," is out now from Houghton Mifflin Harcourt. More Jennifer Miller.
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